WHEREAS, every child is valuable to our state; and

      WHEREAS, Cornelia de Lange Syndrome is a congenital syndrome who's common characteristics include: low birthweight (often under five pounds), slow growth and small stature, and small head size (microcephaly); and

      WHEREAS, CdLS is a rare and often undiagnosed syndrome; and

      WHEREAS, between 1:10,000 and 1:30,000 live births result in CdLS every year; and

      WHEREAS, undiagnosed victims of CdLS often suffer a childhood death; and

      WHEREAS, early detection can lead to a full and productive life for children born with CdLS; and

       WHEREAS, early detection hinges on public awareness of CdLS; and

      NOW, THEREFORE, I, DIRK KEMPTHORNE, Governor of the State of Idaho, do hereby proclaim May 10, 2003, to be

CORNELIA de LANGE SYNDROME AWARENESS DAY

in Idaho.

IN WITNESS WHEREOF, I have hereunto set my hand and caused to be affixed the Great Seal of the State of Idaho at the Capitol in Boise on this twenty-fifth day of April in the year of our Lord two-thousand and three and of the Independence of the United States of America the two hundred twenty-seventh and of the Statehood of Idaho the one hundred thirteenth.

BEN YSURSA
SECRETARY OF STATE