WHEREAS, Cornelia de Lange Syndrome is a congenital syndrome that effects newborns and who’s common characteristics include: low birthweight (often under five pounds), slow growth and small stature, and small head size (microcephaly); and

        WHEREAS, CdLS is a very rare disease which effects between 1 in 10,000 and 1 in 30,000 live births every year, and is often an undiagnosed syndrome; and

       WHEREAS, undiagnosed victims of CdLS often do not survive childhood; and

      WHEREAS, early detection can lead to a full and productive life for children born with CdLS; and

      WHEREAS, Idaho’s most valuable natural resource is its children and it is necessary to promote early detection of CdLS to ensure the safety of our precious gems;

      NOW, THEREFORE, I, DIRK KEMPTHORNE, Governor of the State of Idaho, do hereby proclaim May 14th, 2005, to be

CORNELIA de LANGE SYNDROME AWARENESS DAY

in Idaho.

IN WITNESS WHEREOF, I have hereunto set my hand and caused to be affixed the Great Seal of the State of Idaho at the Capitol in Boise on this twenty-ninth day of April in the year of our Lord two-thousand and five and of the Independence of the United States of America the two hundred twenty-ninth and of the Statehood of Idaho the one hundred fifteenth.

BEN YSURSA
SECRETARY OF STATE